Rare Rebels
SHARING STORIES OF PATIENTS AND FAMILIES and the organizations who support them ---- This podcast will explore resilience through difficult diagnoses. We’re not looking to highlight a specific diagnosis but rather the diverse experiences that allow us to step into the perspective of these families. They will share about times of joy and pain, as both are important aspects of their journeys. We will also invite healthcare-related organizations to share how they support families through challenging times.
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Episodes
Friday Jun 02, 2023
Friday Jun 02, 2023
The Imperfect JOY® podcast is taking on a new focus. We will explore resilience through many different challenges that families face when they have a child diagnosed with critical illness. We’re not looking to highlight a specific diagnosis but rather the diverse experiences that allow us to step into the perspective of these families. This podcast will share how they are able to be present for joy amidst extremely difficult circumstances, while also recognizing times that the light seemed so distant that they fell into the arms of their tribes.
Tuesday May 04, 2021
Tuesday Mar 23, 2021
Tuesday Mar 23, 2021
As kids get older and naturally become more distant from their parents as the explore their indepedence and the way they fit into the larger world outside of the home, it often becomes challenging to document this time with them. Anja provides insight about why the teenage years should still be captured and how she captures meaningful moments for families through her photography and filmmaking.
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Featuring Anja Poehlmann
https://www.anjapoehlmann.com/
https://www.instagram.com/by_anjap/
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www.imagesofjoy.com
Wednesday Mar 10, 2021
Wednesday Mar 10, 2021
Join our Affinity group or apply for a mentorship: https://imageofjoy.com
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Mandee Simas
Bewilder Photography
https://www.instagram.com/bewilderphotos
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03:28 Who is Mandee
05:30 Adjusting her approach to photography for her son who is on the spectrum
07:14 Creating lifestyle wall art
12:30 Taking photos and making memories on their land
14:40 The story behind the name bewilder photography
16:20 What is a wall scroll?
16:55 In-House finishing
17:10 Guiding clients to the products we love most
17:34 Finding ways to print your own memories
18:20 Memorial sessions for pregnancy & infant loss
24:36 Layers of stories in times of joy
25:58 Image of Joy #1 - watering plants
28:35 Using reflected light
29:38 Image of Joy #2 - grocery cart
32:24 Image of Joy #3 - spinning
33:13 Capturing grandparents too
33:49 Assembling my daughter’s newborn film two years later
36:23 Apply for a mentorship: https://imagesofjoy.com
Wednesday Mar 03, 2021
Wednesday Mar 03, 2021
Melissa Ortendahl
https://www.melissaortendahlphotography.com/
https://www.instagram.com/melissaortendahlphotography/
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View Melissa's Images of Joy: https://imagesofjoy.com/episode-3/
Follow us: https://www.instagram.com/images.of.joy
Apply for the Family Filmmakers Certification Beta: https://imagesofjoy.com
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01:00 How Lolly got started in photography
01:34 Current professional photography focus
02:07 Motherhood - the push and pull for time and attention
03:30 “ Suspend your moments”
05:01 “Photography is a love letter to our children,” preserving our stories
08:37 Memories passed down to us
10:22 Printing photos - memories we can hold
13:47 Making our stories accessible to our children
16:02 Difference between in-home and studio newborn sessions
18:25 In-home details captured
20:09 Including pets & family activities
21:07 Attire & your home during in-home newborn sessions
22:40 Finding comfort in authenticity & giving grace to meltdowns
24:56 Instructing kids without forcing them
25:39 Balancing guided posing & lighting without being obtrusive
28:01 Apply for the Family Filmmakers Certification Beta: https://imagesofjoy.com
28:43 Lolly’s image of joy #1 - (photography with her daughter) Sharing the stories within stories
32:42 Lolly’s image of joy #2 - (reading on the stairs) finding beauty in imperfection
35:33 Lolly’s image of joy #3 - bond between father & daughter
36:42 Lolly’s images of joy #4 & #5 - (dress-up & laugh ) authentic expressions
38:00 Seeing our own stories in other families’ photographs
39:13 Letting go of perfection
41:22 How to work with Lolly
Tuesday Feb 23, 2021
Tuesday Feb 23, 2021
Lolly Nazario
https://www.lollyslens.com/
https://www.instagram.com/lollyslensphotography/
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Apply for the Family Filmmakers Certification Beta: https://imagesofjoy.com
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01:00 How Lolly got started in photography
01:34 Current professional photography focus
02:07 Motherhood - the push and pull for time and attention
03:30 “ Suspend your moments”
05:01 “Photography is a love letter to our children,” preserving our stories
08:37 Memories passed down to us
10:22 Printing photos - memories we can hold
13:47 Making our stories accessible to our children
16:02 Difference between in-home and studio newborn sessions
18:25 In-home details captured
20:09 Including pets & family activities
21:07 Attire & your home during in-home newborn sessions
22:40 Finding comfort in authenticity & giving grace to meltdowns
24:56 Instructing kids without forcing them
25:39 Balancing guided posing & lighting without being obtrusive
28:01 Apply for the Family Filmmakers Certification Beta: https://imagesofjoy.com
28:43 Lolly’s image of joy #1 - (photography with her daughter) Sharing the stories within stories
32:42 Lolly’s image of joy #2 - (reading on the stairs) finding beauty in imperfection
35:33 Lolly’s image of joy #3 - bond between father & daughter
36:42 Lolly’s images of joy #4 & #5 - (dress-up & laugh ) authentic expressions
38:00 Seeing our own stories in other families’ photographs
39:13 Letting go of perfection
41:22 How to work with Lolly
Sunday Feb 14, 2021
Sunday Feb 14, 2021
Watch Carter's video love note on the companion blog post: https://imagesofjoy.com/episode-8/
Sunday Feb 14, 2021
Sunday Feb 14, 2021
View Candice's image of joy on the companion blog: https://imagesofjoy.com/episode-7/
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-----Guest info------
Candice Shuman
Candice Shuman Films & Photos
Ontario, Canada
https://www.instagram.com/candice.shuman
https://www.facebook.com/candiceshumanfilmsphotos/?ref=py_c
Sunday Feb 14, 2021
Sunday Feb 14, 2021
Companion Blog: https://imagesofjoy.com/episode-5/
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------Guest Info------
Anja Poehlmann
Brighton & Hove, UK
https://www.anjapoehlmann.com/
https://www.instagram.com/by_anjap/
Sunday Feb 14, 2021
Sunday Feb 14, 2021
See Mandee's image of joy on the companion blog post: https://imagesofjoy.com/episode-4/
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-----Guest info-----
Mandee Simas
Bewilder Photography
Muskoka, Canada
https://www.instagram.com/bewilderphotos/